The Fight Duchenne Foundation (FDF) is a Not For Profit Australian charity with full Gift Recipient Status for tax deductibility of donations. FDF was formed out of the desire to see tangible services and benefits given to the families of Australia affected by Duchenne muscular dystrophy (DMD).
Duchenne muscular dystrophy is the most common inherited neuromuscular disorder affecting 1in 3500 boys (rarer in girls). DMD results in a progressive degeneration of all muscles in the human body including muscles in the limbs, diaphragm and heart. Children lose the ability to walk. and to perform the most simple of tasks such as eating, scratching their nose and even blinking. Children are losing their battle with Duchenne as early as 9 or 10 years old and typically die in their early 20’s from heart and respiratory failure. There is no cure for Duchenne. It is 100% fatal.
FDF is focused on providing assistance to all Duchenne children, their siblings and families whilst in the fight against time with DMD.
All families living with DMD in Australia have a limited time that is already filled with stress and worry. t is the goal of FDF to make sure that the lives of the boys and their families are spent together and as worry free as possible by allocating funds and services to the Duchenne Community where required.
The Board members of the FDF have collectively raised close to $2million through the charity cycle ride known as The Tour Duchenne. Their passion and vision is the driving force of the FDF and will help it grow and raise money for the Duchenne community.
The Tour Duchenne
The Tour Duchenne is a charity bike ride that raises money for the Duchenne MD community. It was first held in 2009 and is the brainchild of Julian Thompson. Julian and Sharyn Thompson heard the terrible news of their boy James, the inspiration of the tour Duchenne, having Duchenne MD on Father’s Day 2006. Julian thought that he should do something in Australia to raise more awareness and much needed funds for the fight to find a cure for his son and the other children and families who are fighting this disease every day. And so, the Tour Duchenne was born.
• Airlie Beach to Gold Coast, 4th-13th September 2015
• 50 Riders (Celebrity, Parents, Friends, Corporate)
• 6 Lead Riders / 12 Support Crew / Support Vehicles
• Twin Share Accommodation / All meals
• Cycling Kit / Casual Jacket and Shirts
• Framed team photo
For more information please visit www.fightduchenne.org.au